These links are provided as additional resources for those who are interested in reviewing other information or learning more about lung health, disease and sleep disorders. No endorsement by the University of Minnesota Center for Lung Science and Health is intended or implied and the Center is not responsible for the availability or accuracy of the content of these external sites being offered for your convenience.
For more information about adding your orgnization's link to this page, please email lunginfo@umn.edu.
Resource Link Categories (in alphabetical order) by:
Specific Disease/Program
General Lung - Multiple Areas
General Medical - Including Lung
Related Professional Societies - Doctors, Allied Professionals, Researchers
National Health Statistics
SPECIFIC DISEASE/PROGRAM
Acute Respiratory Failure/Critical Care
ARDS Foundation
A non-profit organization of volunteers affected by ARDS (acute respiratory distress syndrome)
ATS' Critical Care Primer for Patients and Families
Critical Care Nursing Resources
Sepsis Forum
Collaboration between industry and academia to focus on management of patients with sepsis
Critical Care Forum
IntensiveCare.com
University of Minnesota Center for Excellence in Critical Care
Alpha-1 Antitrypsin Deficiency
Alpha-1 Association
Helps to identify those affected by alpha-1 antitrypsin deficiency and provides support, education and advocacy.
Alpha-1 Advocacy Alliance
Alpha-1 Foundation
Provides resources, education al brochures and information on testing and diagnosis and funds Alpha-1 research
Alpha-Net
Assists patients and families with support aned education to manage their health and sponsors clinical trials for Alpha-1 therapies. Provides "The Big Fat Reference Guide to Alpha-1"
Alpha-1 Kids
Provides support and information for parents and their children with Alpha-1
National Organization for Rare Disorders (NORD)
Asthma and Allergy
National Heart, Lung and Blood Institute
A branch of the National Institutes of Health (NIH) which provides major funding for related research. The NHLBI Information Center has a telephone information service at 301-251-1222 to answer a variety of health-related questions including asthma
ALA of Minnesota
American Lung Association
Assist in the prevention of lung disease through education programs, research and advocacy
National Asthma Education and Prevention Program
Asthma and Allergy Foundation of America
Allergy and Asthma Network - Mothers of Asthmatics
Network for learning about asthma and allergies, meetings others, and getting answers to questions and concerns
American Thoracic Society (See Asthma Center)
Intended for a healthcare professional. Includes information on asthma epidemiology, guidelines, clinical and research resources, publications, clinical cases and more.
Global Initiative for Asthma
COPD/Chronic Bronchitis/Emphysema/Alpha-1 Antitrypsin Deficiency
National Heart, Lung and Blood Institute
Branch of the National Institutes of Health, a national government agency focused on health and key provider of research funding
National Emphysema / COPD Association (NECA)
EFFORTS (Emphysema Foundation for Our Right to Survive)
Patient group formed by patients for patients
COPD International
Provides interactive support for COPD patients, their caregivers and others
COPD News
Intended for COPD patients, caregivers and other interested parties do not have Web access (provides free monthly news)
COPD Support
Provides COPD support and COPD caregiver message board, newsletter, exercise support and smoking cessation assistance
RespHealthSite
Provides information on COPD
National Lung Health Education Program (NHLEP)
Founded by Dr. Thomas Petty, internationally-recognized authority on COPD and related lung diseases, for the purpose of educating others in order to prevent lung disease.
International COPD Coalition
COPD Lung Profiler
Information based on peer-reviewed medical literature
COPD Foundation
National Emphysema Foundation
American Lung Association of Minnesota
Will Rogers Institute
Cystic Fibrosis
National Heart, Lung and Blood Institute
Cystic Fibrosis Foundation
National Organization for Rare Disorders (NORD)
Lung Cancer
National Cancer Institute
University of Minnesota Cancer Center
Lung Cancer Alliance
Provides patient education
Lung Cancer Frontiers
Society for Integrative Oncology
LungCancer.org
Provides counseling, educational program assistance and practical help to people with cancer and their loved ones
Mesothelioma Applied Research Foundation
Non-profit organization comprised of patients, family members, advocates and physicians interested in expanding research and treatments for those affected by mesothelioma.
Lung Transplant
UMN-Fairview Lung Transplant Center
Largest lung transplant program in the region.
National Heart, Lung and Blood Institute
United Network for Organ Sharing (UNOS)
Organ Procurement and Transplant Network (OPTN)
American College of Chest Physicians (ACCP)
See guide to lung transplantation
Transplant Living
Provides a state-by-state listing of support groups
The Transplant Center at University of Minnesota Medical Center, Fairview
Second Wind Lung Transplant Association, Inc.
Patient-run organization that provides information on lung transplantation for patients who have had a transplant or who are waiting to have a transplant
Hope Chest News
Children's Organ Transplant Association
Provides fund-raising assistance for anyone who needs a transplant
American Society of Transplant Patient Education
Provides information brochures in English and Spanish
Gift of Life Foundation
Transplant Recipients International Organization, Inc (TRIO)
American Transplant Association
American Society of Transplantion
National Foundation for Transplants
Offers health care and financial support services for transplant candidtaes, recipients and their families
National Transplant Assistance Fund (NTAF)
Helps to raise funds for tranplant patients and provides support and education
Scientific Registry of Transplant Recipients
Provides center-specific volumes and outcomes
American Society of Transplant Surgeons
American Society of Transplants
American Transplant Congress
Joint annual meeting of the American Society of Transplant Surgeons and the American Society of Transplants
Lymphangioleiomyomatosis (LAM)
LAM Foundation (Lymphangioleiomyomatosis)
Information for patients, researchers and medical professionals about LAM, a rare disorder that affects essentially only women.
LAM Treatment Alliance
National Organization for Rare Disorders (NORD)
Primary Ciliary Dyskinesia
PCD Foundation (Primary Ciliary Dyskinesia)
National Organization for Rare Disorders (NORD)
Pulmonary Alveolar Proteinosis (PAP)
PAP Foundation
National Organization for Rare Disorders (NORD)
Pulmonary Fibrosis
Coalition for Pulmonary Fibrosis
National Heart, Lung and Blood Institute
Children's Interstitial Lung Disease (ChILD) Foundation
Provides information and support of families affected by pediatric interstitial lung disease
Pulmonary Fibrosis Foundation
National Organization for Rare Disorders (NORD)
Pulmonary Hypertension
National Heart Lung and Blood Institute
American Heart Association
National volunteer organization that works to reduce coronary heart disease and stroke
National Organization for Rare Disorders (NORD)
Pulmonary Hypertension Association
Pulmonary Hypertension Central
Vascular Disease Foundation
Sarcoidosis
National Sarcoidosis Networking Society
Sarcoidosis Research Institite
National Sarcoidosis Resources Center
Sarcoidosis Online
Provides a physician list, support group database, online newsletter, and a patient-to-patient message forum
Foundation for Sarcoidosis Research
National Organization for Rare Disorders (NORD)
Scleroderma
Scleroderma Foundation
Scleroderma Research Foundation
International Scleroderma Network
Non-profit organization whose volunteers and members provide website information in multiple lanquages, publish a book series, and support research. Manage the Scleroderma Webmaster's Association which provides links to scleroderma resources
Raynaud's Association
National non-profit organization that provides support and education to those with Raynaud's Phenomenon (common condition for patients with scleroderma)
Arthritis Foundation
Sleep Medicine
American Sleep Apnea Association (ASAA)
Non-profit sleep organization that educates public about sleep disorders and provides a service to those affected.
SleepEducation.com
Resource for the public regarding about sleep and related disorders from the American Academy of Sleep Medicine. It provides the latest medical and research information in a way that is easier for the general public to understand. It has an interactive online discussion forum where visitors can post questions and responses. It also has a Sleep Center Locator.
National Sleep Foundation
Sleep Medicine Advance
Online resource for professionals on sleep research, technology and trends
Narcolepsy Network
Restless Legs Syndrome Foundation
Sleep Research Society
SleepCenters
Provides online directory of AASM-accredited sleep disorder facilities in your area.
SLEEP
The official publication of the Associated Professional Sleep Societies
Journal of Clinical Sleep Medicine
The official publication of the American Academy of Sleep which includes applied sleep science, clinical trials, reviews, case reports and commentaries about sleep disorders.
American Sleep Disorders Association (ASDA)
American Sleep Medicine Foundation
NHLBI/NIH National Center on Sleep Disorders Research (NCSDR)
NHLBI Sleep Disorders Information for the Public
Contains information, publications and fact sheets related to sleep
American Insomnia Association
Patient-based organization that works to assist others with insomnia and increase awareness about the problem and options to treat it. Encourages the formation of local support groups.
Tobacco and Smoking Cessation
U.S. Dept. of Health and Human Services
Educational material for both healthcare professionals and consumers
National Heart, Lung and Blood Institute
Provides information on smoking-related topics such as clinical trials, treatment, coping skills, research, law, policy and statistics
Medline Plus: Smoking Cessation
Medline Plus is a service of the U.S. National Library and the National Institutes of Health. Provides links covering a number of related topics including overviews, treatment, coping, health check tools, coverage for tobacco use cessation treatments and much more
Centers for Disease Control and Prevention: Tobacco
Provides information about tobacco use in the U.S. and information about its effect
American Lung Association of Minnesota Tobacco Facts
ClearWay Minnesota
Society for Research on Nicotine and Tobacco
Quitnet
education material and online peer support for consumers
American Cancer Society: Tobacco and Cancer
WebMD: Smoking Cessation Center
Anti-smoking.org
Provides inspiration and tips for staying smoke free
Become An Ex
Collaborative effort between the American Legacy Foundation and the Mayo Clinic for people who are really ready to quit
Campaign for Tobacco-Free Kids
Smoking Cessation
Education material for consumers
Wegener's Granulomatosis Association
GENERAL LUNG DISEASE
National Heart, Lung, and Blood Institute (NHLBI)
A branch of the National Institutes of Health (NIH) which provides major funding for related research. The NHLBI Information Center has a telephone information service at 301-251-1222 to answer a variety of health-related questions including high blood pressure, cholesterol, smoking,asthma, heart disease, obesity, sleep apnea and insomnia.
Fairview Healh Library: Lung Problems and Procedures
Contains information regarding various lung problems and diseases, tests and therapies, including using oxygen at home.
National Jewish Medical and Research Center
Provides lung-related information on pulmonary, allergic and immune disorders
NHLBI Lab e-Notes
A newsletter which highlights research supported by the NHLBI and the latest advances in heart, lung, blood and sleep research
The Pulmonary Paper
Provides information for those who live with COPD, asthma, pulmonary fibrosis and other chronic lung diseases
HEALTHY LIVING AND COMPLEMENTARY CARE
University of Minnesota Center for Spirituality and Healing
Natural Standard
MyPyramid.gov
Aid for selecting the foods and amounts that are right for you
www.nutritiondata.com
Provides nutrient analysis for any food or recipe and helps you selce foods htat match your dietary needs
GENERAL MEDICAL
AdvanceWEB
Online Website by Advance Newsmagazines that provides information on research, technology and trends in a variety of allied professional fields, including respiratory care
American Medical Association (AMA) Doctor Finder
Provides online physician locator with basic professional information on every licensed physician in the U.S. (i.e. about 700,000).
ClinicalTrials.gov
Developed by the National Library of Medicine to provides regularly updated information about federally and privately supported clinical research conducted with human volunteers. Gives information such as clinical trial purpose, location(s), investigator(s), study participant criteria, and contact information.
Mayo Health
MD Consult
MedlinePlus
Health information from the National Library of Medicine
MedlinePlus: Drugs and Supplements
Information on prescription and over-the-counter drugs provided by the U.S. Pharmocopeia
Medscape
From WebMD: Provides news, journal articles, and CMEs for MDs
Medscape Multi-drug Interaction Checker
NHLBI Lab e-Notes
A newsletter which highlights research supported by the NHLBI and the latest advances in heart, lung, blood and sleep research
National Association for Medical Direction for Respiratory Care (NAMDRC)
National organization of physicians that educates its members and addresses regulatory, legislative, and payment issues related to the delivery of respiratory care
National Guideline Clearinghouse
Provides information on medical guidelines in database searchable by disease or condition, treatment, organization and other search options.
PubMed
Online searchable database service provided by the U.S. National Library of Medicine that provides citations and abstract information for peer-reviewed publications
HEALTH STATISTICS
NHLBI Morbidity and Mortality Chart Book
Provides compilation of data on a biennial basis on the size and trends of morbidity and mortality from the cardiovascular, lung and blood diseases. Most of the prevalence, hospitalizations, and mortality statistics data is at the national level but some state data is also provided.
CDC National Center for Health Statistics
Nation's principal health statistics agency. Contains stats on a variety of topics, publications and reports, FASTSTATS A to Z, and a death certificate locator and other health-related information
PROFESSIONAL SOCIETIES
American Academy of Sleep Medicine
Professional organization centered on research and professional education regarding sleep and related disorders
American Medical Association
American College of Occupational and Environmental Medicine
American Association for Respiratory Care (AARC)
Professional society for respiratory care professionals and allied health specialists interested in cardiopulmonary care
American Holistic Nurses Association
American College of Preventative Medicine
American Association of Sleep Technologists (AAST)
Professional Society for sleep technology specialists who perform the technical evaluation of patients with sleep disorders. AAST works to advance the profession by establishing standards of care, developing training programs and educational materials and promoting technical and clinical excellence.
American Nurses Association
American Federation for Medical Research
American Academy of Nursing
International Society for Heart and Lung Transplantation (ISHLT)
American Academy of Allergy, Asthma and Immunology
American Association of Critical Care Nurses
Association Clinical Research Professionals (ACRP)
American Association of Critical Care Nurses
American Academy of Sleep Medicine
Professional organization centered on research and professional education regarding sleep and related disorders
American Academy of Allergy, Asthma and Immunology
American Thoracic Society
Associated Professional Sleep Societies
A joint venture of the American Academy of Sleep Medicine and the Sleep Research Society which organizes the annual SLEEP Meeting for clinical and research professionals and provides the SLEEP journal.
American Association for Respiratory Care (AARC)
Professional society for respiratory care professionals and allied health specialists interested in cardiopulmonary care
American Association of Cardiovascular and Pulmonary Rehabilitation (AACVPR)
American College of Chest Physicians
American College of Pediatrics
American College of Cardiology
American Association of Immunologists
American Society of Clinical Oncology
American Society of Transplantation
America Society of Transplant Surgeons
Associated Professional Sleep Societies
A joint venture of the American Academy of Sleep Medicine and the Sleep Research Society which organizes the annual SLEEP Meeting for clinical and research professionals and provides the SLEEP journal..
Federation of American Societies for Experimental Biology (FASEB)
National Association for Medical Direction for Respiratory Care (NAMDRC)
National organization of physicians that educates its members and addresses regulatory, legislative, and payment issues related to the delivery of respiratory care
Oncology Nursing Society
Society of Clinical Research Associates (SoCRA)
Society of Critical Care Medicine
Large, multi-professional organization dedicated to ensuring excellence in the practice of critical care medicine through research, education and advocacy. Critical Care Medicine is their official publication.
World Congress of Sleep Research Societies
World Federation of Sleep Research and Sleep Medicine Societies
Return to: PACC : Department of Medicine : Medical School : Academic Health Center : myU : U of M Home
